News & Forthcoming Events
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Last Update: 15.07.19 During 2019, the details of our work are: 48 Grants completed to date, and the total amount granted in 2019 is: Our Activity in Recent Years:
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£52,852.34 |
News about the Charity:
With completion of the 15th Grant in 2019 we reached the major milestone of £750,000 raised and granted without taking a single penny from the Charity in administration costs. Everything donated was used for the benefit of the children. This has occurred only two years (almost to the day) from completion of the previous milestone of £500,000 raised and granted. While we hope to target our next big milestone by 2021, we are increasingly limited by the funding we can raise, and , as usual, we shall need the wonderful help we receive from our supporters.
We never anticipated the rate of growth we have seen, or the amount already granted when we started. Sadly this clearly highlights how serious the problems are in this area and how much help is needed.
Donations:
There are full details on our Donation Page of the various methods of making a donation to us, as well as the Everyclick Donation button (centre of the Donation Page), which allows an online donation to be made quickly by Credit or Debit card.
Current and Future Events in 2019:
We started the year with a collection of £720.00 from an 80th Birthday Party, held at Stourbridge Rugby Club. A very kind and useful donation which will be a great help. The St Thomas's Church Xmas Tree Collection has also provided a further useful boost of £250.00. We also received the second of a three year support package from the Barbara Ward Foundation, with another £5,000.00 added to our reserves.
2019 has seen an exceptionally busy start to the year, and with reserves depleted, a short respite to give us time to catch up with our fundraising would be appreciated. Sadly, with the demand that we see, this is unlikely to happen, and 2019 will yet again be a challenge.
As a help towards that funding challenge, local nPower Office staff collected £500.00 for us, which has been matched by the company. Apparently, we helped a child at the start of the year who is related to a member of staff, and they very kindly decided to organise a collection for us. The funding was much needed and has already helped with the latest grant. So thank you again nPower.
Newfields Masonic Old Halesowians Lodge raised £232.00 at a table collection in May and in June we received £1,000.00 from the We are all Making a Difference Charity. Although we are having to operate a short (hopefully) waiting list, these donations , plus other regular income, have allowed us to continue to approve some requests for help.
Stourbridge Motorcycle Club held their Annual Event on July 13th, and we were one of the two designated charities to receive a share of the funds raised, so a big thank you to them, and we now await details of the funding raised.
News of Recent Grants Made:
15.07.19 With some funding coming in we have managed to complete two further grants:
£2,521.13 for a 10 year old young lady with a diagnosis of diplegic cerebral palsy, which exhibits as wekness in her legs and trunk. After assessment, a semi recumbent special exercise trike was proposed to help to build up her lower body strength. With the family able to provide some funding, we agreed to fund the balance required.
£1,457.00 for a local special school to fund a special chair to provide the correct postural support, with variable height adjustment for different activities in class. The chair was to be used by a little girl with a series of complex physical difficulties, and while she had a similar unit at home, she was having to use a small wooden chair at school which was not suitable for her. With the school equipment budget under great pressure, we agreed to help and fully fund the chair.
30.06.19 We have managed to complete three further grants which has cleared the waiting list:
£1,705.00 for a 3 year old with a diagnosis of a left hemiplegia, affecting one side of his body. Although he can sit upright, he rapidly tires, and needs full support. He requires regular transport to both his special nursery, and his physiotherapy sessions. Having outgrown his current car seat, we were asked if we could help with funding for a special car seat with a tilt/turn facility, and a harness to hold him securely. We agreed to fully fund, with the price being reduced by our agreed discount.
£2,000.00 for a 12 year old with a diagnosis of Dandy Walker Syndrome, and global development delay. With no sense of danger, he had learned how to escape from his current bed, putting himself at risk, and a cot bed was required to hold him safely. Newlife had loaned the family a bed for a period, while funds were raised, but with the bed needed for another child, we were asked if we could help with the funding. The total cost was £6,925.00, and with the family still £2,000.00 short of the required amount, we agreed to fund the balance needed.
£449.99 for a 9 year old who has congenital cataracts in both eyes, and we were asked by the Dudley Vision Impairment Service if we could help with funding computer equipment to help him. Dudley MBC can reclaim any VAT, and we agreed to fund the remaining cost.
13.06.19 We have approved a grant of £500.00 towards the cost of a car seat and secure harness for a 5 year old boy. He has a diagnosis of Autism Sprectrum Disorder, is mobile, but requires constant supervision, and is dependent on his parents for all aspects of daily living. He needed a new special car seat with a secure harness to fully restrain him, and with the family able to raise £132.00 towards the £632.00 cost, we agreed to fund the balance required.
10.06.19 We have approved two more grants:
£1,588.50 for an 11 year old with a diagnosis of cerebral visual impairment, severe learning difficulties, and ataxia, which presents as a number of conditions including poor muscle coordination and speech problems. Request was for a special exercise trike to help to develop his muscle strength and coordination, and we agreed to fully fund.
£530.72 for a 9 year old with a diagnosis of Autism, and he also has has a severe learning disability. He releases himself from his safety harness when being transported and can exhibit challenging behaviour. He was assessed at the RDAC for a magnetic harness which held him safe and secure, and we were asked if we could provide the funding, which we approved.
27.05.19 With a small amount of funding coming in we have managed to complete three more Grants, special exercise trikes for two brothers and accessories for a special needs buggy.
£1,300.00 for two brothers agred 3 and 4 years. The older child has a diagnosis of cerebral palsy and has limited mobility due to weakness in the trunk and legs. A trike was proposed to help to develop his luscles and improve coordination. The younger child acquired a spinal cord injury at birth and has no leg movement. The proposal was for a hand pedelled trike to help to strengthen his upper body and improve his coordination. Approx 50% of the cost of each trike had already been pledged, and we were asked to fund the balance to allow purchase to proceed.
£167.00 for a child approaching 4 years old with a diagnosis of Down's Syndrome and extreme hypermobility. A special needs buggy was supplied by Wheelchair Services but the accessories are not supplied (as usually occurs). Request was for help funding the canopy and rain cover which we agreed to fund.
23.05.19 Despite our very low reserves, with some funding coming in we have been able to complete another grant this week.
£1,909.75 for a 12 year old with a diagnosis of a grade 2 intrinsic spinal cord tumour in 2016. He received resection surgery followed by Proton Beam Therapy, which was successful. He is still working to rebuild his leg muscle strength, and balance and his Paediatric Physiotherapist recommended a special exercise trike, which we agreed to fully fund.
13.05.19 We have raised sufficient funds to complete another grant for a 14 year old with a diagnosis of unbalanced translocation of chromosome 22, which exhibits as gross development delay and mobility problems. She has outgrown her walker, and was recently re-assessed for a new unit for use at school. As this is now too large to transport, we have been requested to help with funding a similar unit for home use, which is a request we often receive. We agreed to fully fund the £1,840.00 required.
28.04.19 We have completed one small grant for 4 year old with a diagnosis of Smith Magenis Syndrome which exhibits as delayed speech and language, poor sleep, and challenging behaviour. She needs protection from head banging at night, and we were asked to help with the installation of a Safespace unit which had become available from another family. As it was originally privately funded, the NHS would not cover the installation cost as it was not the original owner. The funding of £400.00 enabled an available unit to be re-used and provide the urgent help needed.
16.04.19 There was a delay for a couple of weeks pending receipt of the Gift Aid Claim, which brought in £5,556.16 within a couple of days of filing the claim on the 6th April. This, together with a few small donations, replenished reserves and allowed us to proceed with a number of applications which had come in, and several subsequently. The level of activity continues to be high, and we have actually completed a further 10 grants in the period: Once again, a significant number of these were small grants, highlighting the beneficial effect that small sums in targetted areas can have.
£1,917.00 He has a severe learning disability and a diagnosis of ASD (Autistic Spectrum Disorder), and requires extensive supervision from his mother who acts as a full time carer. A special exercise trike was proposed by his Paediatric Occupational Therapist to help his development, and we agreed to fully fund
£339.53 He has multiple medical, learning and behavioural needs and is in a long term foster care placement. A suitable car seat was required to provide the support required, with a tilt/turn function to allow easy access. The price was reduced by our agreed discount with the supplier and we agreed to fully fund.
£249.98 She has a diagnosis of cerebral palsy, microcephaly and development delay. To help her development Rebound therapy was proposed, and we were asked to help. We are familiar with this technique, used extensively at two local special schools, and we agreed to fund.
£1,358.45 He has a diagnosis of cerebral palsy spastic diplegia, and is starting to make some progress, now being able to take a few steps with a K-Walker. He needs to develop his leg muscle strength, and a special exercise trike was proposed by his Physiotherapist. We agreed to fund the purchase following a full assessment by the supplier.
£1,285.85 She has a genetic condition with duplication of chromosome 1q, resulting in hypotonia (low muscle tone) and learning difficulties. She can walk but has poor balance and fatigues easily, and her Paediatric Physiotherapist recommended a special exercise trike to help to develop her muscle strength and coordination. With the family having raised £200.00 towards the cost, we agreed to fund the balance.
With completion of the 15th Grant in 2019 we reached the major milestone of £750,000 raised and granted without taking a single penny from the Charity in administration costs. Everything donated was used for the benefit of the children. This has occurred only two years (almost to the day) from completion of the previous milestone of £500,000 raised and granted. While we hope to target our next big milestone by 2021, we are increasingly limited by the funding we can raise, and , as usual, we shall need the wonderful help we receive from our supporters.
We never anticipated the rate of growth we have seen, or the amount already granted when we started. Sadly this clearly highlights how serious the problems are in this area and how much help is needed.
Donations:
There are full details on our Donation Page of the various methods of making a donation to us, as well as the Everyclick Donation button (centre of the Donation Page), which allows an online donation to be made quickly by Credit or Debit card.
Current and Future Events in 2019:
We started the year with a collection of £720.00 from an 80th Birthday Party, held at Stourbridge Rugby Club. A very kind and useful donation which will be a great help. The St Thomas's Church Xmas Tree Collection has also provided a further useful boost of £250.00. We also received the second of a three year support package from the Barbara Ward Foundation, with another £5,000.00 added to our reserves.
2019 has seen an exceptionally busy start to the year, and with reserves depleted, a short respite to give us time to catch up with our fundraising would be appreciated. Sadly, with the demand that we see, this is unlikely to happen, and 2019 will yet again be a challenge.
As a help towards that funding challenge, local nPower Office staff collected £500.00 for us, which has been matched by the company. Apparently, we helped a child at the start of the year who is related to a member of staff, and they very kindly decided to organise a collection for us. The funding was much needed and has already helped with the latest grant. So thank you again nPower.
Newfields Masonic Old Halesowians Lodge raised £232.00 at a table collection in May and in June we received £1,000.00 from the We are all Making a Difference Charity. Although we are having to operate a short (hopefully) waiting list, these donations , plus other regular income, have allowed us to continue to approve some requests for help.
Stourbridge Motorcycle Club held their Annual Event on July 13th, and we were one of the two designated charities to receive a share of the funds raised, so a big thank you to them, and we now await details of the funding raised.
News of Recent Grants Made:
15.07.19 With some funding coming in we have managed to complete two further grants:
£2,521.13 for a 10 year old young lady with a diagnosis of diplegic cerebral palsy, which exhibits as wekness in her legs and trunk. After assessment, a semi recumbent special exercise trike was proposed to help to build up her lower body strength. With the family able to provide some funding, we agreed to fund the balance required.
£1,457.00 for a local special school to fund a special chair to provide the correct postural support, with variable height adjustment for different activities in class. The chair was to be used by a little girl with a series of complex physical difficulties, and while she had a similar unit at home, she was having to use a small wooden chair at school which was not suitable for her. With the school equipment budget under great pressure, we agreed to help and fully fund the chair.
30.06.19 We have managed to complete three further grants which has cleared the waiting list:
£1,705.00 for a 3 year old with a diagnosis of a left hemiplegia, affecting one side of his body. Although he can sit upright, he rapidly tires, and needs full support. He requires regular transport to both his special nursery, and his physiotherapy sessions. Having outgrown his current car seat, we were asked if we could help with funding for a special car seat with a tilt/turn facility, and a harness to hold him securely. We agreed to fully fund, with the price being reduced by our agreed discount.
£2,000.00 for a 12 year old with a diagnosis of Dandy Walker Syndrome, and global development delay. With no sense of danger, he had learned how to escape from his current bed, putting himself at risk, and a cot bed was required to hold him safely. Newlife had loaned the family a bed for a period, while funds were raised, but with the bed needed for another child, we were asked if we could help with the funding. The total cost was £6,925.00, and with the family still £2,000.00 short of the required amount, we agreed to fund the balance needed.
£449.99 for a 9 year old who has congenital cataracts in both eyes, and we were asked by the Dudley Vision Impairment Service if we could help with funding computer equipment to help him. Dudley MBC can reclaim any VAT, and we agreed to fund the remaining cost.
13.06.19 We have approved a grant of £500.00 towards the cost of a car seat and secure harness for a 5 year old boy. He has a diagnosis of Autism Sprectrum Disorder, is mobile, but requires constant supervision, and is dependent on his parents for all aspects of daily living. He needed a new special car seat with a secure harness to fully restrain him, and with the family able to raise £132.00 towards the £632.00 cost, we agreed to fund the balance required.
10.06.19 We have approved two more grants:
£1,588.50 for an 11 year old with a diagnosis of cerebral visual impairment, severe learning difficulties, and ataxia, which presents as a number of conditions including poor muscle coordination and speech problems. Request was for a special exercise trike to help to develop his muscle strength and coordination, and we agreed to fully fund.
£530.72 for a 9 year old with a diagnosis of Autism, and he also has has a severe learning disability. He releases himself from his safety harness when being transported and can exhibit challenging behaviour. He was assessed at the RDAC for a magnetic harness which held him safe and secure, and we were asked if we could provide the funding, which we approved.
27.05.19 With a small amount of funding coming in we have managed to complete three more Grants, special exercise trikes for two brothers and accessories for a special needs buggy.
£1,300.00 for two brothers agred 3 and 4 years. The older child has a diagnosis of cerebral palsy and has limited mobility due to weakness in the trunk and legs. A trike was proposed to help to develop his luscles and improve coordination. The younger child acquired a spinal cord injury at birth and has no leg movement. The proposal was for a hand pedelled trike to help to strengthen his upper body and improve his coordination. Approx 50% of the cost of each trike had already been pledged, and we were asked to fund the balance to allow purchase to proceed.
£167.00 for a child approaching 4 years old with a diagnosis of Down's Syndrome and extreme hypermobility. A special needs buggy was supplied by Wheelchair Services but the accessories are not supplied (as usually occurs). Request was for help funding the canopy and rain cover which we agreed to fund.
23.05.19 Despite our very low reserves, with some funding coming in we have been able to complete another grant this week.
£1,909.75 for a 12 year old with a diagnosis of a grade 2 intrinsic spinal cord tumour in 2016. He received resection surgery followed by Proton Beam Therapy, which was successful. He is still working to rebuild his leg muscle strength, and balance and his Paediatric Physiotherapist recommended a special exercise trike, which we agreed to fully fund.
13.05.19 We have raised sufficient funds to complete another grant for a 14 year old with a diagnosis of unbalanced translocation of chromosome 22, which exhibits as gross development delay and mobility problems. She has outgrown her walker, and was recently re-assessed for a new unit for use at school. As this is now too large to transport, we have been requested to help with funding a similar unit for home use, which is a request we often receive. We agreed to fully fund the £1,840.00 required.
28.04.19 We have completed one small grant for 4 year old with a diagnosis of Smith Magenis Syndrome which exhibits as delayed speech and language, poor sleep, and challenging behaviour. She needs protection from head banging at night, and we were asked to help with the installation of a Safespace unit which had become available from another family. As it was originally privately funded, the NHS would not cover the installation cost as it was not the original owner. The funding of £400.00 enabled an available unit to be re-used and provide the urgent help needed.
16.04.19 There was a delay for a couple of weeks pending receipt of the Gift Aid Claim, which brought in £5,556.16 within a couple of days of filing the claim on the 6th April. This, together with a few small donations, replenished reserves and allowed us to proceed with a number of applications which had come in, and several subsequently. The level of activity continues to be high, and we have actually completed a further 10 grants in the period: Once again, a significant number of these were small grants, highlighting the beneficial effect that small sums in targetted areas can have.
£1,917.00 He has a severe learning disability and a diagnosis of ASD (Autistic Spectrum Disorder), and requires extensive supervision from his mother who acts as a full time carer. A special exercise trike was proposed by his Paediatric Occupational Therapist to help his development, and we agreed to fully fund
£339.53 He has multiple medical, learning and behavioural needs and is in a long term foster care placement. A suitable car seat was required to provide the support required, with a tilt/turn function to allow easy access. The price was reduced by our agreed discount with the supplier and we agreed to fully fund.
£249.98 She has a diagnosis of cerebral palsy, microcephaly and development delay. To help her development Rebound therapy was proposed, and we were asked to help. We are familiar with this technique, used extensively at two local special schools, and we agreed to fund.
£1,358.45 He has a diagnosis of cerebral palsy spastic diplegia, and is starting to make some progress, now being able to take a few steps with a K-Walker. He needs to develop his leg muscle strength, and a special exercise trike was proposed by his Physiotherapist. We agreed to fund the purchase following a full assessment by the supplier.
£1,285.85 She has a genetic condition with duplication of chromosome 1q, resulting in hypotonia (low muscle tone) and learning difficulties. She can walk but has poor balance and fatigues easily, and her Paediatric Physiotherapist recommended a special exercise trike to help to develop her muscle strength and coordination. With the family having raised £200.00 towards the cost, we agreed to fund the balance.