News & Forthcoming Events
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Last Update: 20.09.19 During 2019, the details of our work are: 58 Grants completed to date, and the total amount granted in 2019 is: Our Activity in Recent Years:
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£62,982.69 |
News about the Charity:
With completion of the 15th Grant in 2019 we reached the major milestone of £750,000 raised and granted without taking a single penny from the Charity in administration costs. Everything donated was used for the benefit of the children. This has occurred only two years (almost to the day) from completion of the previous milestone of £500,000 raised and granted. While we hope to target our next big milestone by 2021, we are increasingly limited by the funding we can raise, and , as usual, we shall need the wonderful help we receive from our supporters.
We never anticipated the rate of growth we have seen, or the amount already granted when we started. Sadly this clearly highlights how serious the problems are in this area and how much help is needed.
Donations:
There are full details on our Donation Page of the various methods of making a donation to us, as well as the Everyclick Donation button (centre of the Donation Page), which allows an online donation to be made quickly by Credit or Debit card.
Current and Future Events in 2019:
We started the year with a collection of £720.00 from an 80th Birthday Party, held at Stourbridge Rugby Club. A very kind and useful donation which will be a great help. The St Thomas's Church Xmas Tree Collection has also provided a further useful boost of £250.00. We also received the second of a three year support package from the Barbara Ward Foundation, with another £5,000.00 added to our reserves.
2019 has seen an exceptionally busy start to the year, and with reserves depleted, a short respite to give us time to catch up with our fundraising would be appreciated. Sadly, with the demand that we see, this is unlikely to happen, and 2019 will yet again be a challenge.
As a help towards that funding challenge, local nPower Office staff collected £500.00 for us, which has been matched by the company. Apparently, we helped a child at the start of the year who is related to a member of staff, and they very kindly decided to organise a collection for us. The funding was much needed and has already helped with the latest grant. So thank you again nPower.
Newfields Masonic Old Halesowians Lodge raised £232.00 at a table collection in May and in June we received £1,000.00 from the We are all Making a Difference Charity. Although we are having to operate a short (hopefully) waiting list, these donations , plus other regular income, have allowed us to continue to approve some requests for help.
Stourbridge Motorcycle Club held their Annual Event on July 13th, and we were one of the two designated charities to receive a share of the funds raised, so a big thank you to them, and we were pleased to receive a final total of £510.00.
We were again invited to the Butterfly Fellowship 2012 Group in early September as they had kindly collected for us once more, and we received a cheque for £1,000.00, which was very much appreciated. as we were in the process of completing a number of grants.
The Dudley News are holding their Forging a Future Awards on November 28th, and we have been selected as the nominated charity. We have supplied the details requested, as well as 250 donation envelopes for distribution on the tables at the event. We look forward to raising some useful funding from this very generous offer by the Dudley News, as well as the opportunity to raise the profile of the Charity.
The year end will see the completion of the two year term of office of the Gentleman Captain (Stourbridge Golf Club) - Dave Fourness - who very kindly nominated us as one of the two selected charities during his captaincy. We should then receive our share of the funding raised at the start of 2020, which will be a great help in the New Year.
News of Recent Grants Made:
20.09.19 We completed a grant of £443.50 for a 5 year old with a diagnosis of microdeletion of DMD gene (Duchenne Muscular Dystrophy), global development delay, gastrostomy fed, scoliosis, and visual impairment. She needed a special car seat to hold her safely and securely for transport, suitably adapted for her particular condition. With another charity providing a grant of £2,000.00, we agreed to fund the remaining balance required for the purchase to proceed.
11.09.19 We completed a grant of £1,073.35 for a 6 year old with a diagnosis of Joubert Syndrome (a brain disorder affecting movement and coordination), and Dandy Walker Syndrome as well as other medical problems. He is unable to stand or walk independently and uses a wheelchair. The proposal was to fund a special exercise trike to develop his leg strength and general condition, as well as helping to develop his coordination. After our discount from the supplier and a contribution from the family, we agreed to fund the balnce required.
05.09.17 We completed a grant for a 7.5 year old who was born at 28 weeks. She exhibits with learning difficulties and gross motor delay. She has dysmorphic features and microcephaly, and is awaiting genetic investigation. Although mobile, she can only walk short distances, and a special exercise trike was proposed to try to develop her leg muscles, general strength, and co-ordination. We agreed to fully fund the final cost, reduced by VAT exemption and our supplier discount to £1,466.40.
27.08.19 We completed a grant of £338.54 for a 2 year old with a diagnosis of Wolf Hirschhorn Syndrome, exhibiting as facial disfigurement, global development delay, seizures and hypotonia. Needed a fully supportive car seat to hold him securely. We agreed to fully fund.
20.08.19 We completed a grant of £300.00 for a 7 month old child with a diagnosis of a congenital disorder of Glycosylation, exhibiting as severe and intractable epilepsy, hypotonia, global development delay, and visual impairment. Unable to support himself he needs a fully supportive special car seat. With the family able to contibute to the discounted cost of £442.64, a balance of £300.00 was required which we agreed to fund.
11.08.19 We have completed four further grants over the last few weeks, the details being:
£1,875.75 for a 9 year old with a diagnosis of Wolf Hirschhorn Syndrome, has limited independent mobility and requires full adult support. He uses special boots and a standing frame, but we were asked to help with funding a Cavalier Walker to try to get him walking. With the family having raised some funding, we agreed to fund the balance required for the purchase to proceed.
£990.70 for a 3.5 year old with a diagnosis of Periventricular Leukomalacia (a type of brain injury which can occur with premature birth) is non mobile and unable to sit without full support. His current seating system holds him correctly for eating etc., but is uncomfortable for any extended period. He needed a suitable fully supportive comfortable seating system, and a P-pod bean seat was proposed, which we agreed to fund.
£1,570.10 for a 5.5 year old with very limited mobility. She uses a wheelchair for general transportation, and a standing frame both at home and at school to help to prevent deterioration of her legs. A special exercise trike was proposed to try to further build her leg muscles, and we agreed to fully fund.
£637.49 for a 4 year old with a diagnosis of ASD and he presents with challenging behaviour. He needs a safe space within a special needs pushchair when out with his mother to help to control his behaviour. A Special Tomato pushchair was proposed and we agreed to fully fund.
22.07.19 We have approve £1,448.55 for a 4 year old with a number of medical problems and he suffers with recurrent chest infections. He uses a frame to try to get him walking, and a special exercise trike was proposed to help to build his leg muscles and general fitness. He was fully assessed by the supplier and was capable of using the trike. We agreed to fully fund the purchase, the cost being reduced by our discount agreement with the supplier.
15.07.19 With some funding coming in we have managed to complete two further grants:
£2,521.13 for a 10 year old young lady with a diagnosis of diplegic cerebral palsy, which exhibits as wekness in her legs and trunk. After assessment, a semi recumbent special exercise trike was proposed to help to build up her lower body strength. With the family able to provide some funding, we agreed to fund the balance required.
£1,457.00 for a local special school to fund a special chair to provide the correct postural support, with variable height adjustment for different activities in class. The chair was to be used by a little girl with a series of complex physical difficulties, and while she had a similar unit at home, she was having to use a small wooden chair at school which was not suitable for her. With the school equipment budget under great pressure, we agreed to help and fully fund the chair.
30.06.19 We have managed to complete three further grants which has cleared the waiting list:
£1,705.00 for a 3 year old with a diagnosis of a left hemiplegia, affecting one side of his body. Although he can sit upright, he rapidly tires, and needs full support. He requires regular transport to both his special nursery, and his physiotherapy sessions. Having outgrown his current car seat, we were asked if we could help with funding for a special car seat with a tilt/turn facility, and a harness to hold him securely. We agreed to fully fund, with the price being reduced by our agreed discount.
£2,000.00 for a 12 year old with a diagnosis of Dandy Walker Syndrome, and global development delay. With no sense of danger, he had learned how to escape from his current bed, putting himself at risk, and a cot bed was required to hold him safely. Newlife had loaned the family a bed for a period, while funds were raised, but with the bed needed for another child, we were asked if we could help with the funding. The total cost was £6,925.00, and with the family still £2,000.00 short of the required amount, we agreed to fund the balance needed.
£449.99 for a 9 year old who has congenital cataracts in both eyes, and we were asked by the Dudley Vision Impairment Service if we could help with funding computer equipment to help him. Dudley MBC can reclaim any VAT, and we agreed to fund the remaining cost.
13.06.19 We have approved a grant of £500.00 towards the cost of a car seat and secure harness for a 5 year old boy. He has a diagnosis of Autism Sprectrum Disorder, is mobile, but requires constant supervision, and is dependent on his parents for all aspects of daily living. He needed a new special car seat with a secure harness to fully restrain him, and with the family able to raise £132.00 towards the £632.00 cost, we agreed to fund the balance required.
10.06.19 We have approved two more grants:
£1,588.50 for an 11 year old with a diagnosis of cerebral visual impairment, severe learning difficulties, and ataxia, which presents as a number of conditions including poor muscle coordination and speech problems. Request was for a special exercise trike to help to develop his muscle strength and coordination, and we agreed to fully fund.
£530.72 for a 9 year old with a diagnosis of Autism, and he also has has a severe learning disability. He releases himself from his safety harness when being transported and can exhibit challenging behaviour. He was assessed at the RDAC for a magnetic harness which held him safe and secure, and we were asked if we could provide the funding, which we approved.
With completion of the 15th Grant in 2019 we reached the major milestone of £750,000 raised and granted without taking a single penny from the Charity in administration costs. Everything donated was used for the benefit of the children. This has occurred only two years (almost to the day) from completion of the previous milestone of £500,000 raised and granted. While we hope to target our next big milestone by 2021, we are increasingly limited by the funding we can raise, and , as usual, we shall need the wonderful help we receive from our supporters.
We never anticipated the rate of growth we have seen, or the amount already granted when we started. Sadly this clearly highlights how serious the problems are in this area and how much help is needed.
Donations:
There are full details on our Donation Page of the various methods of making a donation to us, as well as the Everyclick Donation button (centre of the Donation Page), which allows an online donation to be made quickly by Credit or Debit card.
Current and Future Events in 2019:
We started the year with a collection of £720.00 from an 80th Birthday Party, held at Stourbridge Rugby Club. A very kind and useful donation which will be a great help. The St Thomas's Church Xmas Tree Collection has also provided a further useful boost of £250.00. We also received the second of a three year support package from the Barbara Ward Foundation, with another £5,000.00 added to our reserves.
2019 has seen an exceptionally busy start to the year, and with reserves depleted, a short respite to give us time to catch up with our fundraising would be appreciated. Sadly, with the demand that we see, this is unlikely to happen, and 2019 will yet again be a challenge.
As a help towards that funding challenge, local nPower Office staff collected £500.00 for us, which has been matched by the company. Apparently, we helped a child at the start of the year who is related to a member of staff, and they very kindly decided to organise a collection for us. The funding was much needed and has already helped with the latest grant. So thank you again nPower.
Newfields Masonic Old Halesowians Lodge raised £232.00 at a table collection in May and in June we received £1,000.00 from the We are all Making a Difference Charity. Although we are having to operate a short (hopefully) waiting list, these donations , plus other regular income, have allowed us to continue to approve some requests for help.
Stourbridge Motorcycle Club held their Annual Event on July 13th, and we were one of the two designated charities to receive a share of the funds raised, so a big thank you to them, and we were pleased to receive a final total of £510.00.
We were again invited to the Butterfly Fellowship 2012 Group in early September as they had kindly collected for us once more, and we received a cheque for £1,000.00, which was very much appreciated. as we were in the process of completing a number of grants.
The Dudley News are holding their Forging a Future Awards on November 28th, and we have been selected as the nominated charity. We have supplied the details requested, as well as 250 donation envelopes for distribution on the tables at the event. We look forward to raising some useful funding from this very generous offer by the Dudley News, as well as the opportunity to raise the profile of the Charity.
The year end will see the completion of the two year term of office of the Gentleman Captain (Stourbridge Golf Club) - Dave Fourness - who very kindly nominated us as one of the two selected charities during his captaincy. We should then receive our share of the funding raised at the start of 2020, which will be a great help in the New Year.
News of Recent Grants Made:
20.09.19 We completed a grant of £443.50 for a 5 year old with a diagnosis of microdeletion of DMD gene (Duchenne Muscular Dystrophy), global development delay, gastrostomy fed, scoliosis, and visual impairment. She needed a special car seat to hold her safely and securely for transport, suitably adapted for her particular condition. With another charity providing a grant of £2,000.00, we agreed to fund the remaining balance required for the purchase to proceed.
11.09.19 We completed a grant of £1,073.35 for a 6 year old with a diagnosis of Joubert Syndrome (a brain disorder affecting movement and coordination), and Dandy Walker Syndrome as well as other medical problems. He is unable to stand or walk independently and uses a wheelchair. The proposal was to fund a special exercise trike to develop his leg strength and general condition, as well as helping to develop his coordination. After our discount from the supplier and a contribution from the family, we agreed to fund the balnce required.
05.09.17 We completed a grant for a 7.5 year old who was born at 28 weeks. She exhibits with learning difficulties and gross motor delay. She has dysmorphic features and microcephaly, and is awaiting genetic investigation. Although mobile, she can only walk short distances, and a special exercise trike was proposed to try to develop her leg muscles, general strength, and co-ordination. We agreed to fully fund the final cost, reduced by VAT exemption and our supplier discount to £1,466.40.
27.08.19 We completed a grant of £338.54 for a 2 year old with a diagnosis of Wolf Hirschhorn Syndrome, exhibiting as facial disfigurement, global development delay, seizures and hypotonia. Needed a fully supportive car seat to hold him securely. We agreed to fully fund.
20.08.19 We completed a grant of £300.00 for a 7 month old child with a diagnosis of a congenital disorder of Glycosylation, exhibiting as severe and intractable epilepsy, hypotonia, global development delay, and visual impairment. Unable to support himself he needs a fully supportive special car seat. With the family able to contibute to the discounted cost of £442.64, a balance of £300.00 was required which we agreed to fund.
11.08.19 We have completed four further grants over the last few weeks, the details being:
£1,875.75 for a 9 year old with a diagnosis of Wolf Hirschhorn Syndrome, has limited independent mobility and requires full adult support. He uses special boots and a standing frame, but we were asked to help with funding a Cavalier Walker to try to get him walking. With the family having raised some funding, we agreed to fund the balance required for the purchase to proceed.
£990.70 for a 3.5 year old with a diagnosis of Periventricular Leukomalacia (a type of brain injury which can occur with premature birth) is non mobile and unable to sit without full support. His current seating system holds him correctly for eating etc., but is uncomfortable for any extended period. He needed a suitable fully supportive comfortable seating system, and a P-pod bean seat was proposed, which we agreed to fund.
£1,570.10 for a 5.5 year old with very limited mobility. She uses a wheelchair for general transportation, and a standing frame both at home and at school to help to prevent deterioration of her legs. A special exercise trike was proposed to try to further build her leg muscles, and we agreed to fully fund.
£637.49 for a 4 year old with a diagnosis of ASD and he presents with challenging behaviour. He needs a safe space within a special needs pushchair when out with his mother to help to control his behaviour. A Special Tomato pushchair was proposed and we agreed to fully fund.
22.07.19 We have approve £1,448.55 for a 4 year old with a number of medical problems and he suffers with recurrent chest infections. He uses a frame to try to get him walking, and a special exercise trike was proposed to help to build his leg muscles and general fitness. He was fully assessed by the supplier and was capable of using the trike. We agreed to fully fund the purchase, the cost being reduced by our discount agreement with the supplier.
15.07.19 With some funding coming in we have managed to complete two further grants:
£2,521.13 for a 10 year old young lady with a diagnosis of diplegic cerebral palsy, which exhibits as wekness in her legs and trunk. After assessment, a semi recumbent special exercise trike was proposed to help to build up her lower body strength. With the family able to provide some funding, we agreed to fund the balance required.
£1,457.00 for a local special school to fund a special chair to provide the correct postural support, with variable height adjustment for different activities in class. The chair was to be used by a little girl with a series of complex physical difficulties, and while she had a similar unit at home, she was having to use a small wooden chair at school which was not suitable for her. With the school equipment budget under great pressure, we agreed to help and fully fund the chair.
30.06.19 We have managed to complete three further grants which has cleared the waiting list:
£1,705.00 for a 3 year old with a diagnosis of a left hemiplegia, affecting one side of his body. Although he can sit upright, he rapidly tires, and needs full support. He requires regular transport to both his special nursery, and his physiotherapy sessions. Having outgrown his current car seat, we were asked if we could help with funding for a special car seat with a tilt/turn facility, and a harness to hold him securely. We agreed to fully fund, with the price being reduced by our agreed discount.
£2,000.00 for a 12 year old with a diagnosis of Dandy Walker Syndrome, and global development delay. With no sense of danger, he had learned how to escape from his current bed, putting himself at risk, and a cot bed was required to hold him safely. Newlife had loaned the family a bed for a period, while funds were raised, but with the bed needed for another child, we were asked if we could help with the funding. The total cost was £6,925.00, and with the family still £2,000.00 short of the required amount, we agreed to fund the balance needed.
£449.99 for a 9 year old who has congenital cataracts in both eyes, and we were asked by the Dudley Vision Impairment Service if we could help with funding computer equipment to help him. Dudley MBC can reclaim any VAT, and we agreed to fund the remaining cost.
13.06.19 We have approved a grant of £500.00 towards the cost of a car seat and secure harness for a 5 year old boy. He has a diagnosis of Autism Sprectrum Disorder, is mobile, but requires constant supervision, and is dependent on his parents for all aspects of daily living. He needed a new special car seat with a secure harness to fully restrain him, and with the family able to raise £132.00 towards the £632.00 cost, we agreed to fund the balance required.
10.06.19 We have approved two more grants:
£1,588.50 for an 11 year old with a diagnosis of cerebral visual impairment, severe learning difficulties, and ataxia, which presents as a number of conditions including poor muscle coordination and speech problems. Request was for a special exercise trike to help to develop his muscle strength and coordination, and we agreed to fully fund.
£530.72 for a 9 year old with a diagnosis of Autism, and he also has has a severe learning disability. He releases himself from his safety harness when being transported and can exhibit challenging behaviour. He was assessed at the RDAC for a magnetic harness which held him safe and secure, and we were asked if we could provide the funding, which we approved.