Last Update: 26.04.18
During 2018, the details of our work are:
29 Grants completed to date this year, and the total amount granted in 2018 is:
The worryingly high level of activity in both 2016 and 2017 is pushing the Charity beyond it's capacity to raise funds, and we again had to draw further on our reserves in 2017. We continue to manage to respond to the level of demand that we have seen, but any further funding help available in 2018, is urgently needed.
Our Activity in Recent Years:
News about the Charity:
With completion of the 11th Grant in 2017 we reached the major milestone of £500,000 raised and granted without taking a single penny from the Charity in administration costs. Everything donated was used for the benefit of the children. We completed the year having reached £626,700 granted, and help given in 512 cases, since we started in November 2003.
We never anticipated the rate of growth we have seen, or the amount already granted when we started. Sadly this clearly highlights how serious the problems are in this area and how much help is needed.
There are full details on our Donation Page of the various methods of making a donation to us, as well as the Everyclick Donation button (centre of the Donation Page), which allows an online donation to be made quickly by Credit or Debit card.
Completed Events in 2017:
On the evening of January 12th, we were pleased to be invited to the Loan Talk Annual Awards ceremony in London, and having been chosen as the Charity to receive the proceeds of a collection and a silent auction held that evening (as a result of a contact made at the CCFS Poker Night event), we had the opportunity to address the attendees. We received a cheque for the amount raised (£1,380.00), and we are very grateful to Loan Talk for helping us.
On 13th February the Chairman was invited to attend the Hagley Golf Club Seniors AGM, and speak about the work of the Charity. The Senior's Captain has very kindly selected us as his chosen charity for 2017, collections and events will be held throughout the year, and we should receive a cheque at the next AGM (12th February 2018). The target is at least £2,000, which will be very useful funding at the start of 2018. The Senior's Captain has three golf events organised during the year, and we have supplied further brochures, collection boxes etc., to try to raise as much as possible.
The Chairman was again invited to speak at Stourbridge Rotary Club, initially the date being the 5th April, to update everyone on the progress of the Charity, but following illness of the speaker for their Luncheon on 1st March, the Chairman responded to a request for help. As the talk was already prepared, he stepped in at short notice and was able to both update everyone on progress over the last year, and to thank them for their support. As one of the President's chosen charities we subsequently received a donation of £2,000.00, which was very much appreciated.
Kinver Floral Arts are once again collecting for us this year, and Stourbridge Amateur Operatic Society very kindly made a donation of £200.00 to us.
On 3rd August the Chairman visited ASDA Merry Hill to collect a cheque for £500.00. ASDA run a green token collection scheme and for several months three charities are named and customers vote for where they would prefer the ASDA donations to go. We do not know who proposed us, but we were then selected by ASDA, and of the three charities, we gained the most votes and were awarded the first prize of £500.00, while the other two each received £200.00. We are very grateful to our proposer, and to the customers of ASDA who voted for us. The funding will be of significant help as we have already been very busy this year.
We are also extremely grateful for the significant number of local groups supporting us, which have a very beneficial effect.
Our intrepid organisers, Carolyn and Miles, ran another Quiz Night on Saturday November 18th. This event has previously been very successful for us, and with additional support at this year's event, resulting in a total of 134 contestants, in 18 reams, this was again the case. Including a few small donations from several people unable to attend, the final total was an excellent £1,320.00, a very useful addition to our funds.
At the end of November the Chairman was invited to attend a prresentation at The Talbot Hotel (Stourbridge) to receive a £500.00 donation from Freemasonry. The Charity was proposed by Stability Lodge as this year is the 300th aniversary of Freemasonry, and it is being marked by awards to local charities..
Current and Future Events in 2018:
We again had a number of packs of Christmas cards printed and donated to the Charity, and these continue to be available. We currently have eight different designs available, and we are selling packs of 10 cards/envelopes for £3.00, with all of the proceeds going to the Charity. We hope to persuade more supporters to consider buying stocks of cards for Christmas 2018. The funding raised would be a great help to us at present, so please contact us if you would like to help.
With a busy start to 2018, we were very pleased to receive a donation of £10,000.00 from Alloy Wire International, which greatly helped our funds, and we shall shortly be visiting them to speak about the work of the Charity.
The Chairman attended the Senior's AGM at Hagley Golf Club on Monday 12th February, to receive a cheque following a collection throughout the year for us, and give a brief presentation of work done during the year. The Seniors collected £2,083.89, which will be a great help to us.
We were nominated as one of the two Captain's charities at Stourbridge Golf Club for the new Captain's two year term of office. He has already set up an Everyclick donation page, and funds are starting to be collected for us.
The Chairman also attended a meeting of Kinver Floral Arts on Tuesday evening 13th March, to collect a cheque, as they have very kindly been collecting for us throughout the year. They raised £1,000.00 for the Charity which we were very pleased to accept.
The family of a child we helped last year are currently fundraising for us with a run in the Edinburgh Marathon on 27th May. There is a sponsorship page on Everyclick link and any help and support would be greatly appreciated. A substantial amount has already been raised, and is much needed as applications for equipment have now started to come in rapidly.
News of Recent Grants Made:
26.04.18 We have approved £1,990.25 for the purchase of a Hydrotilt chair for a 14 year old with a diagnosis of Duchenne Muscular Dystrophy, a full time wheelchair user, and he has other complex physical difficulties that limit his ability to sit in an upright position independently. Request was for a special comfortable chair which would give respite from sitting in his wheelchair, provide comfort, and hold him securely in the correct position. The local NHS Trust will not fund this additional equipment, and we agreed to fully fund to allow purchase to proceed.
20.04.18 We have approved a grant of £1,904.85 for a 10 year old born with cerebral palsy spastic quadriplegia. He can self propel his manual wheelchair, but is only able to stand and take a couple of steps with help from two adults. The NHS provided a miniwalker, but his legs are too weak to support his bodyweight and he needs two adults to help him as well. He is classed as non-mobile, so is not eligible for any other equipment, without which he is unable to exercise to gain leg strength, and gain some mobility and independence. A Cavalier Walker was proposed which he can propel with his feet while using the saddle to support his weight, and gain valuable exercise. Following a succesful assessment, we agreed to fully fund, the cost being reduced by our agreed discount with the supplier.
17.04.18 We have completed two further grants:
£1,795.20 for a 10 year old with a diagnosis of cerebral palsy spastic quadriplegia, and is only mobile by using his electric wheelchair. He is fully dependent on adult help, as all transfers require the use of a hoist. Because he is non mobile, the NHS will not fund any exercise equipment, and a Cavalier walker had been proposed by his Paediatric Physiotherapist. This is a stable four wheel version of a bike, with handlebar steering, and no pedals. Propulsion is by using legs/feet, and the user can rest on the saddle. He was fully assessed, and quickly achieved much needed exercise, so we were asked to help. With our discount structure, the price reduced significantly, and we agreed to fully fund.
£3,509.36 for an 18 year old with an undiagnosed development disorder, hydrocephalus, epilepsy, visual impairment, worsening scoliosis (curvature and deterioration of the spine) and a profound and multiple learning disability. She is fully wheelchair bound and depends totally on adult help. At home, her only alternative to the wheelchair seating is her bed, as she has outgrown her previous seat. With her scoliosis, she needs fully supporting, and we were asked to help with funding a special comfortable seating system. With the family able to make a small contribution, we agreed to fund the remaining cost.
12.04.18 We have agfeed a grant of £574.60 for a 6 year old with a diagnosis of diplegic cerebral palsy, and who is unable to walk without the use of a walker, and some adult assistance. She has a walking frame at school, and the proposal was to fund a similar walker for home use to help her development. The cost was reduced by our discount agreement with the supplier, and we agreed to fund the full balance required.
07.04.18 We have completed 4 further grants.
£1,764.55 for an 11 year old with a diagnosis of spinal muscular atrophy type 2, and who, five years ago, required surgery to correct her scoliosis by the insertion of rods. She recently required another operation to change these, and the procedure did not go well, neither did her stay in hospital. With further complications she requires extensive care, and we were asked if we could help with funding a P-pod seat to support her properly, and comfortably, at home. With no other funding available, we agreed to provide the full grant required.
£310.99 for an 11 year old with a range of complex vision problems which can not be corrected by glasses. He needs magnified print, but at school there is no room in class for his video magnifier, which excludes him from a number of activities, and he struggles to read at home. Dudley Vision Impairment Service recommended an Ipad, similar to units we have funded before for children with this type of problem, and we agreed to fully fund.
£1,848.64 for a 5 year oldShe has a diagnosis of spastic cerebral palsy, with further complications, epilepsy, and a deteriorating spinal condition. She has some lung function problems, and as she is unable to roll, crawl or sit unaided, she needs to be held securely. Her local NHS Trust will only supply one type of special seating system, which is no longer suitable for her, and with her deteriorating back condition she urgently needed the correct support. We agreed to fully fund a P-Pod Bean Seat for her.
26.03.18 We have approved a grant of £1,200.00 for an 8 year old with a diagnosis of Sickle Cell Anaemia, with duplication of two chromosomes. He also exhibits global development delay, suffers with leg pain, has regular physiotherapy, and his Paediatric Physiotherapist recommended a special exercise trike to try to build his leg muscle strength and improve his mobility. With the family having raised approx £250.00 towards the cost, we agreed to fund the balance.
24.03.18 We have approved a grant of £947.32 for a 10 year old He has a diagnosis of Kabuki Syndrome, club feet, and a range of medical problems. He uses a standard wheelchair which does not provide head and neck support, and is not very comfortable when he is taken out. Request was for help with funding a special buggy which would hold him securely, provide the head and neck support required, and be more comfortable for him. We agreed to fund the buggy, and the family raised the balance for minor accessories.
15.03.18 We have approved a grant of £138.00 for a 7 year old with a diagnosis of arrested hydrocephalus and left hemiplegia. He was unable to support himself to sit correctly. We were asked to fund a special posture cushion which would provide the additional support he needed, to which we agreed.
13.03.18 We have agreed to pledge £1,000.00 towards the £4,998.00 cost of an eye gaze system for a 10 year old with Cerebral palsy, and other medical problems.. She is unable to sit or move independently, and this equipment would help her greatly. The family was approaching a number of charities, and required positive confirmation of the funding we would provide. The offer was made subject to the remaining balance of funding being in place.
28.02.18 We have approved a grant of £355.00 for a 3.5 year old with Rett Syndrome, which affects brain development and results in learning and mobility difficulties. She is non-mobile, and is unable to sit with the correct posture. The requirement was for a portable posture support seat for her, and we agreed to fully fund the purchase.
21.02.18 We have approved a grant of £259.00 for a 2 year old with a diagnosis of Global development delay. His assessment was that he would need the support of a special buggy for a number of years, as he was only able to walk short distances indoors. With the family able to raise £50.00 towards the £309.00 cost, we agreed to fund the balance required.
14.02.18 We completed two further grants for special exercise trikes for two brothers:
£1,250.75 for a 9 year old with a diagnosis of cerebral palsy spastic quadriplegia. He can only walk short distances, and needs otherwise to use a wheelchair. A special exercise trike was proposed to help to improve his mobilty by easing the tight muscles in his legs and building his leg and core strength. With a family contribution of £250.00, we agreed to fund the balance required for purchase.
£1,440.20 for a 7 year old with a diagnosis of cerebral palysy hemiplegia, which presents as weakness all down his right hand side. While he can walk further, he has balance problems, and a special exercise trike was again proposed to help to improve his leg and core strength. We agreed to fund the full cost of purchase.
09.02.18 We completed two further grants for car seats:
£550.50 for a 6 year old. She has a diagnosis of severe non verbal ASD with global development delay and sensory processing difficulties. Having outgrown her special car seat, she was using a standard seat belt when in the car, and releasing herself regularly. She then presented a serious danger to the driver and passengers by opening doors/windows, and with no sense of danger she urgently needed a special car seat with suitable restraint to hold her securely. With our supplier discount and the family able to provide a small amount of funding, we agreed to provide the balance to allow the purchase of a suitable seat to proceed.
28.01.18 We have now completed a further 4 grants:
£1.025.10 for a 10.5 year old. She has a diagnosis of Down's Syndrome, heart problems, skeletal dysplasia, other medical problems, full time wheelchair user and has severe learning difficulties. She needs a fully supportive special car seat, suitable for her condition, to hold her securely. With another charity contributing part of the cost, we agreed to fund the balance.
£302.00 for a 15.5 year old. He has visual impairment and further investigation was in progress relating to Marfan Syndrome, and Meares-Irlen Syndrome. The Dudley Visual Impairment Service recommended a special iPad, suitable for his condition, and we were asked if we could help to fund the cost. We agreed to cover the full cost of purchase, in view of the circumstances.
£1,422.35 for an 11 year old. She has a diagnosis of Cerebral palsy spastic quadriplegia, and is currently able to walk using a walking frame, special footwear, and wearing a protective helmet. The proposal was to fund the purchase of a special exercise trike to try to overcome his leg weakness and improve his mobility. Having proved he was capable of using the pedals on the selected trike at an assessment, we were asked if we could help. The total cost reduced with our agreed discount with the supplier, and we agreed to fully fund.
£3,820.00 for a 4 year old. She has a diagnosis of a chromosomal abnormality, Trisomy 9 Mosaic, and partial Trisomy 11 Mosaic. She exhibits complex medical problems, physical and learning disabilities, and is a full time wheelchair user. She has to use special seating both at home and in school, and was using a special cot bed which was on loan from another charity, and needed back. She requires constant monitoring and oxygen during the night, and the bed has proved to help the family greatly. We were asked if we could help with funding a similar replacement unit, and with the family having raised some funds, we agreed to contribute the balance required.